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Baby Malak has been detected with spinal muscular atrophy. Courtesy: Mohammed Al Alami

If it goes untreated, symptoms progress rapidly and the majority of infants die before two years of age from respiratory failure. Courtesy: Mohammed Al Alami

Malak, was born with spinal muscular atrophy. She is being treated at Al Jalila Children's Speciality Hospital. Courtesy: Mohammed Al Alami

She received the lifesaving Dh8m treatment at the hospital in Dubai on Sunday. Courtesy: Mohammed Al Alami

Mohammed with baby Malak, who has a rare muscle wasting disease. Courtesy: Mohammed Al Alami

Mohammed and Nihal Al Alami with baby Malak. Courtesy: Mohammed Al Alami

Now Malak can look forward to a future free of the illness. Courtesy: Mohammed Al Alami

Mr Al Alami's first child, Abdulrahman, had the same condition diagnosed when he was just 27 days old. Courtesy: Mohammed Al Alami

The condition typically presents after birth but before the age of six months. Courtesy: Mohammed Al Alami

Baby Malak has been detected with spinal muscular atrophy. Courtesy: Mohammed Al Alami

If it goes untreated, symptoms progress rapidly and the majority of infants die before two years of age from respiratory failure. Courtesy: Mohammed Al Alami

Malak, was born with spinal muscular atrophy. She is being treated at Al Jalila Children's Speciality Hospital. Courtesy: Mohammed Al Alami

She received the lifesaving Dh8m treatment at the hospital in Dubai on Sunday. Courtesy: Mohammed Al Alami

Mohammed with baby Malak, who has a rare muscle wasting disease. Courtesy: Mohammed Al Alami

Mohammed and Nihal Al Alami with baby Malak. Courtesy: Mohammed Al Alami

Now Malak can look forward to a future free of the illness. Courtesy: Mohammed Al Alami

Mr Al Alami's first child, Abdulrahman, had the same condition diagnosed when he was just 27 days old. Courtesy: Mohammed Al Alami

The condition typically presents after birth but before the age of six months. Courtesy: Mohammed Al Alami

Baby Malak has been detected with spinal muscular atrophy. Courtesy: Mohammed Al Alami

Father's joy after baby receives Dh8m life-saving drug

Businessman Hasan Al Fardan donates Dh82,000 to cover medical costs after reading about three-month-old Malak’s plight in 'The National'

July 05, 2021

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