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Sam with Darth Revan, a powerful Sith. The costume is worn by Pawel Rostworowski, who leads the Rub Al-Kahli Spire of The Dark Empire.

Sam, 6, has Angelman syndrome, which affects the nervous system. People with the condition often smile, laugh frequently and have a sunny disposition. All photos: Em Ray

Sam with members of the three groups. Appearances by legions are strictly voluntary and they are not for hire.

Sam with members of the UAE Garrison of the 501st Legion, Niima Outpost of Rebel Legion, and Rub Al-Kahli Spire of The Dark Empire of Star Wars enthusiasts. They troop, or turn out in costumes, to support charities or other good causes.

Sam with Gisele Clark (C), hotel manager at Hilton Dubai The Walk, and her staff, who dressed in blue for the day for the shoot, the colour associated with International Angelman Syndrome Day.

Sam with David Clark from the UAE Garrison, as a Shadow Trooper.

Sam with Beatriz Manzano, from the UAE Garrison, as Emperor Palpatine.

Sam with Darth Revan. The shoot took place in the desert at the weekend.

Sam with Darth Revan, a powerful Sith. The costume is worn by Pawel Rostworowski, who leads the Rub Al-Kahli Spire of The Dark Empire.

Sam, 6, has Angelman syndrome, which affects the nervous system. People with the condition often smile, laugh frequently and have a sunny disposition. All photos: Em Ray

Sam with members of the three groups. Appearances by legions are strictly voluntary and they are not for hire.

Sam with members of the UAE Garrison of the 501st Legion, Niima Outpost of Rebel Legion, and Rub Al-Kahli Spire of The Dark Empire of Star Wars enthusiasts. They troop, or turn out in costumes, to support charities or other good causes.

Sam with Gisele Clark (C), hotel manager at Hilton Dubai The Walk, and her staff, who dressed in blue for the day for the shoot, the colour associated with International Angelman Syndrome Day.

Sam with David Clark from the UAE Garrison, as a Shadow Trooper.

Sam with Beatriz Manzano, from the UAE Garrison, as Emperor Palpatine.

Sam with Darth Revan. The shoot took place in the desert at the weekend.

Sam with Darth Revan, a powerful Sith. The costume is worn by Pawel Rostworowski, who leads the Rub Al-Kahli Spire of The Dark Empire.

Star Wars enthusiasts troop out to raise awareness of rare genetic disorder

Em Ray's son Sam, 6, has Angelman syndrome, a genetic disorder that occurs in one in 15,000 people

February 16, 2022

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