Patients have spoken publicly about the quality of care they have received at the first summit to help improve the experience in regional hospitals.
Muscular Dystrophy patient Maryam Al Ali, 53, first suffered from symptoms of the debilitating disease when she was 15.
Muscle weakness as a teenager led to regular falls, eventually confining her to a wheelchair when she was 25.
Ms Al Ali’s disease progressively worsened, but she continued her schooling, training to become a teacher in Arabic, math and science.
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Patient Experience Summit: 'life changing' approach to long term care
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She hopes to inspire others to stay positive when life is at its most difficult.
“I did not allow my diagnosis to change my life,” said Ms Al Ali.
“Nobody wants to be in hospital, and the years I spent in the intensive care unit were difficult and lonely, but I believe that this was God’s will for me.”
Ms Ali transferred to Amana Healthcare to receive long term care, where she has been able to lead an active and fulfilling life.
“The biggest healthcare development for me has been the increased awareness and focus on long-term care facilities in the UAE,” she said.
“When I became ill, my only option was to go into the ICU in acute care hospitals. Now there are facilities whose focus is on quality of life for patients with long-term chronic conditions such as mine.”
The first GCC Patient Experience Summit in Abu Dhabi aims to explore the latest ideas and new learning opportunities in the healthcare sector, by sharing testimonies of those receiving care.
The summit discussed the increasing role of technology in improving clinical care and efficiency of hospitals toward patients.
Since moving to Amana Healthcare in Abu Dhabi, Ms Al Ali has forged a strong relationship with staff, whom she said are positive and encouraging, treating her as a person, rather than a patient.
The approach has helped her keep a positive outlook on life.
“My goal is to motivate as many other people as I can who are in a similar situation as me to show them that their disease does not have to stop them from living a happy life,” she said.
“Although I am very shy by nature, the more I interact with and meet new people, the more confident I am.
“The feeling of helping others see the positive in their lives brings me so much happiness and positivity to mine.”
Blackpink World Tour [Born Pink] In Cinemas
Starring: Rose, Jisoo, Jennie, Lisa
Directors: Min Geun, Oh Yoon-Dong
Rating: 3/5
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Farasan Boat: 128km Away from Anchorage
Director: Mowaffaq Alobaid
Stars: Abdulaziz Almadhi, Mohammed Al Akkasi, Ali Al Suhaibani
Rating: 4/5
Friday's schedule at the Etihad Airways Abu Dhabi Grand Prix
GP3 qualifying, 10:15am
Formula 2, practice 11:30am
Formula 1, first practice, 1pm
GP3 qualifying session, 3.10pm
Formula 1 second practice, 5pm
Formula 2 qualifying, 7pm
The Penguin
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Listen to Extra Time
Ruwais timeline
1971 Abu Dhabi National Oil Company established
1980 Ruwais Housing Complex built, located 10 kilometres away from industrial plants
1982 120,000 bpd capacity Ruwais refinery complex officially inaugurated by the founder of the UAE Sheikh Zayed
1984 Second phase of Ruwais Housing Complex built. Today the 7,000-unit complex houses some 24,000 people.
1985 The refinery is expanded with the commissioning of a 27,000 b/d hydro cracker complex
2009 Plans announced to build $1.2 billion fertilizer plant in Ruwais, producing urea
2010 Adnoc awards $10bn contracts for expansion of Ruwais refinery, to double capacity from 415,000 bpd
2014 Ruwais 261-outlet shopping mall opens
2014 Production starts at newly expanded Ruwais refinery, providing jet fuel and diesel and allowing the UAE to be self-sufficient for petrol supplies
2014 Etihad Rail begins transportation of sulphur from Shah and Habshan to Ruwais for export
2017 Aldar Academies to operate Adnoc’s schools including in Ruwais from September. Eight schools operate in total within the housing complex.
2018 Adnoc announces plans to invest $3.1 billion on upgrading its Ruwais refinery
2018 NMC Healthcare selected to manage operations of Ruwais Hospital
2018 Adnoc announces new downstream strategy at event in Abu Dhabi on May 13
Source: The National
Titanium Escrow profile
Started: December 2016
Founder: Ibrahim Kamalmaz
Based: UAE
Sector: Finance / legal
Size: 3 employees, pre-revenue
Stage: Early stage
Investors: Founder's friends and Family
Business Insights
- Canada and Mexico are significant energy suppliers to the US, providing the majority of oil and natural gas imports
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UAE currency: the story behind the money in your pockets
Super heroes
Iron Man
Reduced risk of dementia
Alcohol consumption could be an issue
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Cardiac disease, stroke and dementia from high heart rate
Spider-Man
Agility reduces risk of falls
Increased risk of obesity and mental health issues
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Vegetarian diet reduces obesity
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Childhood traumas increase risk of mental illnesses
Thor
He's a god
The%20specs
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Company name: Play:Date
Launched: March 2017 on UAE Mother’s Day
Founder: Shamim Kassibawi
Based: Dubai with operations in the UAE and US
Sector: Tech
Size: 20 employees
Stage of funding: Seed
Investors: Three founders (two silent co-founders) and one venture capital fund
How to protect yourself when air quality drops
Install an air filter in your home.
Close your windows and turn on the AC.
Shower or bath after being outside.
Wear a face mask.
Stay indoors when conditions are particularly poor.
If driving, turn your engine off when stationary.
Squid Game season two
Director: Hwang Dong-hyuk
Stars: Lee Jung-jae, Wi Ha-joon and Lee Byung-hun
Rating: 4.5/5
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The specs
Engine: Turbocharged four-cylinder 2.7-litre
Power: 325hp
Torque: 500Nm
Transmission: 10-speed automatic
Price: From Dh189,700
On sale: now
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The Bio
Hometown: Bogota, Colombia
Favourite place to relax in UAE: the desert around Al Mleiha in Sharjah or the eastern mangroves in Abu Dhabi
The one book everyone should read: 100 Years of Solitude by Gabriel Garcia Marquez. It will make your mind fly
Favourite documentary: Chasing Coral by Jeff Orlowski. It's a good reality check about one of the most valued ecosystems for humanity
COMPANY PROFILE
Name: HyperSpace
Started: 2020
Founders: Alexander Heller, Rama Allen and Desi Gonzalez
Based: Dubai, UAE
Sector: Entertainment
Number of staff: 210
Investment raised: $75 million from investors including Galaxy Interactive, Riyadh Season, Sega Ventures and Apis Venture Partners
UAE jiu-jitsu squad
Men: Hamad Nawad and Khalid Al Balushi (56kg), Omar Al Fadhli and Saeed Al Mazroui (62kg), Taleb Al Kirbi and Humaid Al Kaabi (69kg), Mohammed Al Qubaisi and Saud Al Hammadi (70kg), Khalfan Belhol and Mohammad Haitham Radhi (85kg), Faisal Al Ketbi and Zayed Al Kaabi (94kg)
Women: Wadima Al Yafei and Mahra Al Hanaei (49kg), Bashayer Al Matrooshi and Hessa Al Shamsi (62kg)
